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Posts by category

• Category: Current Clinical Trial
  • International Plasminogen Deficiency Study: HISTORY
• Category: Patient Journey Video
  • The Patient Journey – Video
• Category: Toolkits
  • Newly Diagnosed Toolkit
  • Insurance Approval Toolkit
  • Frequently Asked Questions Toolkit
  • Why You Need a Medical Home Toolkit
  • Mental Health Toolkit: Coping with Chronic, Rare Disease

directors

• Chris Howell, MD
• Amy Shapiro, MD
• Sarah Bein, MD
• Ryan Bialas, MD
• Rebecca Bialas, MD

Stories

• Renae
• Maria
• Regan
• Zack
• Hendrix