Our Stories:
Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org
Community
Events:
NBDF’s Bleeding Disorders Conference, August 13-15, 2026, in Orlando, FL
We will have a presence at this conference, which provides excellent education for families and an opportunity to meet others involved in the NBDF and the bleeding disorders community.
PLGD Patient Roundtable, November 6, 2026, in Orlando, FL
This year’s PLGD Patient Roundtable will be held in conjunction with Hope Charities’ 2026 Hope Conference in Orlando, FL from November 5-7, 2026. We hope you can join us! Register for the conference here! Both virtual and in person registration is offered.
Virtual Community Engagement Sessions for Patients and their Families
2026 Sessions: Now moving to MONTHLY!
June 26, 2026: Tips for Traveling
July 16, 2026: Back to School + New Member Welcome Session starting at 7:30pm EST
August 26, 2026: Ask the Expert: Q+A with Dr. Amy Shapiro
All sessions are held at 8pm EST.
These community sessions on Zoom for patients and their families are intended as a way to gather together with other members of the PLGD community, in a discussion facilitated by members of the PLGD Foundation board. Some sessions are specific themes and some are more general discussion forums. This is a great place to start for new families who may have questions and want to get to know other families in the community! It’s also a great way for existing members to stay connected. Everyone is welcome!
Link to join all sessions: PLGD Community Zoom
ANNUAL EVENTS:
Rare Disease Day, February 28, 2026
Find in-person and live events here when they are announced.
Plasminogen Deficiency Awareness Day, May 4th
Stay tuned here, and subscribe to our newsletter, for more details about the events each May.
Where in the World are PLGD Patients:
Add your location to our Community Map! Note: No identifying information is linked to your location.
Virtual Community
Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:
Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:
