Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org. By submitting your story, you understand that the Foundation may publish it on its website and/or social media only with your permission.
This year’s PLGD Patient Roundtable will be held in conjunction with Hope Charities’ 2026 Hope Conference in Orlando, FL from November 5-7, 2026. We hope you can join us! Register for the conference here! Both virtual and in person registration is offered.
These community sessions on Zoom for patients and their families are intended as a way to gather together with other members of the PLGD community, in a discussion facilitated by members of the PLGD Foundation board. Some sessions are specific themes and some are more general discussion forums. This is a great place to start for new families who may have questions and want to get to know other families in the community! It’s also a great way for existing members to stay connected. Everyone is welcome!
Link to join all sessions: PLGD Community Zoom
Upcoming Session:
September 13, 2026, 7pm EST: Treatment Reality: Ryplazim and Beyond
October 15, 2026, 8pm EST: Emotional Check In Night: Real Talk about PLGD
Find in-person and live events here when they are announced.
Stay tuned here, and subscribe to our newsletter, for more details about the events each May.
Sometimes the most helpful thing for a family with a new diagnosis of Plasminogen Deficiency is to know that you are not alone, and to connect with someone else who has been in your shoes. Our Patient Ambassador Program pairs new PLGD families with existing families to serve as a point of contact and communication, for questions and generally sharing experiences.
*Please note, an Ambassador should not take the place of a medical provider.
PLGD patients are found all over the world! To connect with the PLGD Patient Community in your part of the world, find a Welcome Message and contact information for your International Patient Ambassador below.
To become an International Patient Ambassador, please contact us at volunteer@plgd.org to get involved!
Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:
Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:
