Our Stories:
Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org
Community
Events:
Welcome Session for Newly Diagnosed Patients and their Families
Our first virtual Welcome Session was held on May 15th, 2024. We intend to host another session towards the end of 2024. Stay tuned for dates, or reach out to us to express interest in the next session!
2nd Annual PLGD Patient Roundtable x NBDF Bleeding Disorders Conference, September 12-14, 2024, Atlanta
We hope you can join us at the 2nd Annual PLGD Patient Roundtable, held in conjunction with the NBDF’s Bleeding Disorders Conference, this year in Atlanta, GA! Participants will need to register for the Bleeding Disorders conference, and will then have access to all of the conference’s educational sessions, including out special Roundtable focusing on PLGD, a networking event for patients with various types of rare and ultra rare bleeding disorders, and other opportunities for building friendships and community. Financial assistance is available by contacting Julia McCarthy at jmccarthy@core-rx.com.
Register for the conference here.
Where in the World are PLGD Patients:
Add your location to our Community Map! Note: No identifying information is linked to your location.
Virtual Community
Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:
Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:
