Our Mission:
We are a non-profit organization dedicated to supporting PLGD patients and their families. We provide education and community, and we work to support research for better treatments, and better lives.
We are a non-profit organization dedicated to supporting PLGD patients and their families. We provide education and community, and we work to support research for better treatments, and better lives.
We’re working with the American Thrombosis and Hemostasis Network (ATHN) and the CDC to increase data collection on PLGD patients’ experiences and outcomes.
We’re developing educational materials for healthcare providers to more easily recognize and diagnose PLGD