Our Mission:
We are a non-profit organization dedicated to supporting PLGD patients and their families. We provide education and community, and we work to support research for better treatments, and better lives.
News and Updates
What We’re Working On…
- We’re collaborating with the National Hemophilia Foundation (NHF) to include PLGD in their advocacy, educational, and research activities.
- We’re working to make it easier for patients with plasminogen deficiency to be treated at Hemophilia Treatment Centers (HTCs), where they can receive comprehensive care from the most experienced team of doctors and staff
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We’re working with the American Thrombosis and Hemostasis Network (ATHN) and the CDC to increase data collection on PLGD patients’ experiences and outcomes.
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We’re developing educational materials for healthcare providers to more easily recognize and diagnose PLGD
Our Partners
