Improving the lives of PLGD patients, Plasminogen Deficiency Foundation Learn More About PLGD together Your donations go directly to improving the lives of plasminogen deficiency patients. Plasminogen Deficiency Foundation DONATE

Our Mission:

We are a non-profit organization dedicated to supporting PLGD patients and their families. We provide education and community, and we work to support research for better treatments, and better lives.

News and Updates

What We’re Working On…

  • We’ve put together a NEW Insurance Approval Toolkit to help patients and their doctors better understand and navigate the insurance approval process for medications to treat PLGD, like Ryplazim. Find the complete Toolkit at About PLGD > Patient Resources!
  • Educating providers who are most likely to diagnose PLGD is a major goal of our foundation; Dr. Rebecca Bialas presented a PLGD case study to the faculty and residents of the Duke Ophthalmology Department in May 2021.
  • We’re working with the American Thrombosis and Hemostasis Network (ATHN) and the CDC to increase data collection on PLGD patients’ experiences and outcomes.

  • We’re developing educational materials for healthcare providers to more easily recognize and diagnose PLGD

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