Our Stories:
Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org
Community
Events:
Rare Disease Day, February 28, 2026
Find in-person and live events here when they are announced.
Virtual Community Engagement Sessions for Patients and their Families: Sessions Held Quarterly
Our next session will be held Thursday, September 4th, 2025, at 8pm EST.
These quarterly community sessions on Zoom for patients and their families are intended as a way to gather together with a volunteer from the PLGD Foundation and a Nurse Educator from Kedrion, to ask and answer questions and share our experiences.
May 4th, PLGD Awareness Day
Stay tuned for details about 2026’s planned activities!
National Bleeding Disorder’s Bleeding Disorders Conference, August 21-23, 2025, in Aurora, CO
We will have a presence at this conference, which provides excellent education for families and an opportunity to meet others involved in the NBDF and the bleeding disorders community. Look for a Networking Hour sponsored by Kedrion, and featuring a talk by one of our very own community members!
PLGD Patient Roundtable, November 7, 2025
This year’s PLGD Patient Roundtable will be held in conjunction with Hope Charities’ 2025 Hope Conference in Orlando, FL. We hope you can join us! Details and a link to registration will be provided here soon. Travel grants are available for those who need assistance to attend!
Kedrion’s Patient Insight Forum
This event takes place annually, as a way to gauge the needs of our patient community. Stay tuned here, and subscribe to our newsletter, for more details.
Where in the World are PLGD Patients:
Add your location to our Community Map! Note: No identifying information is linked to your location.
Virtual Community
Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:
Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:
