Community

Events:

Rare Disease Day, February 28, 2026

Find in-person and live events here when they are announced.

Virtual Community Engagement Sessions for Patients and their Families: Sessions Held Quarterly

Our next session will be held Thursday, September 4th, 2025, at 8pm EST.

These quarterly community sessions on Zoom for patients and their families are intended as a way to gather together with a volunteer from the PLGD Foundation and a Nurse Educator from Kedrion, to ask and answer questions and share our experiences.

May 4th, PLGD Awareness Day

Stay tuned for details about 2026’s planned activities!

National Bleeding Disorder’s Bleeding Disorders Conference, August 21-23, 2025, in Aurora, CO

We will have a presence at this conference, which provides excellent education for families and an opportunity to meet others involved in the NBDF and the bleeding disorders community. Look for a Networking Hour sponsored by Kedrion, and featuring a talk by one of our very own community members!

PLGD Patient Roundtable, November 7, 2025

This year’s PLGD Patient Roundtable will be held in conjunction with Hope Charities’ 2025 Hope Conference in Orlando, FL. We hope you can join us! Details and a link to registration will be provided here soon. Travel grants are available for those who need assistance to attend!

Kedrion’s Patient Insight Forum

This event takes place annually, as a way to gauge the needs of our patient community. Stay tuned here, and subscribe to our newsletter, for more details.