Get Involved

Donate

The Plasminogen Deficiency Foundation is a 501(c)(3) nonprofit organization, and all donations are fully tax deductible. Your financial support helps us achieve our mission of improving the lives of PLGD patients and supporting research for a cure. Every dollar of your donation is reinvested into resources to sustain and advance our cause. We couldn’t do it without you!

We are able to accept donations via the following payment methods:

Credit cards / Debit cards

PayPal

Venmo

Cash App

US Bank ACH (lowest fees!)

Check (no fees!)

After making your donation, you will receive an emailed receipt from the PLGD Foundation with all the required information to document your donation for tax purposes.

Form 990 for Public Inspection

Planned Giving

There are many ways to leave a legacy to support the work and mission of the Plasminogen Deficiency Foundation, including gifts left in your will, and memorial gifts for loved ones. Please contact us if you are interested in making a legacy or planned gift.

Volunteer

Our work depends on patients, families, and supporters volunteering their time and talents to bring our mission to life. We invite you to contribute towards a better future for the PLGD community by joining us! Please contact us at volunteer@plgd.org, and specify in your email in which of the following areas you would like to volunteer:

Volunteer with the Foundation

  • We would love your help distributing educational materials to local hospitals, telling your story to your community or healthcare providers, connecting with our virtual community, or becoming a Patient Ambassador to help other patients on their journey.
  • There are also many administrative elements to running a foundation. If you have experience in nonprofit management, administrative tasks, or are interested in committee membership positions, please contact us.

Advocacy

  • Reach out to lawmakers, insurers, or other decision-makers to advocate on behalf of PLGD and other rare disease patients.

Become a Patient Ambassador

Sometimes the most helpful thing for a family with a new diagnosis of Plasminogen Deficiency is to know that you are not alone, and to connect with someone else who has been in your shoes. Our Patient Ambassador Program pairs new PLGD families with existing families to serve as a point of contact and communication, for questions and  generally sharing experiences. If you would like to participate in this program, either to serve as an Ambassador, or to be paired with one, please complete the Contact Us form HERE, and check the appropriate box.

*Please note, an Ambassador should not take the place of a medical provider.

Fundraise

The Plasminogen Deficiency Foundation has been committed from the start to working together – patients, families, supporters, healthcare teams – to accomplish our goals. Among our most inspiring supporters are our Fundraisers, who rally their personal networks to fundraise for the Plasminogen Deficiency Foundation. Your fundraising efforts – big or small – have an enormous impact on our ability to carry out our mission. Bringing your own community together in support of a wonderful cause makes for a truly rewarding and fun experience.

You can host a fundraiser in five easy steps:

  1. Download our Community Fundraiser Toolkit to learn all about fundraising, and access resources and detailed instructions for your fundraiser.
  2. Create a Personalized Fundraiser Page. Click here to get started!
  3. Spread the word about your event! Invite your whole network of friends and loved ones and let them know why their support matters.
  4. Have fun! Make your event – in person or online – an event to remember. Welcome everyone, keep the energy high, and your supporters engaged. After all, what are we doing here if not making life more fun?
  5. Say thank you. Thank you supporters for making our mission possible – to improve the lives of all patients with PLGD through education, awareness, and community. We couldn’t do it without them, or you!

Fundraiser Ideas

Stay Informed

Join our mailing list so you can stay informed about treatment updates, research updates and opportunities, news, and upcoming events!

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The Plasminogen Deficiency Foundation values your privacy and will not sell or share your information with any other organizations.